Pretty desperate here in Iowa. I passed a test for overnight oxygen May 31. Near end of October and my pulmonologist still hasn’t ordered. My medical supplier tried to help this week as they don’t get why it’s not being done. Part of the problem is being diagnosed by half my doctors as Myasthenia and half not. I have a great pulmo at Mayo I last saw in 2016 but problematic for my daughter in the midst of Covid to get me up there. Had a better pulmo who first sent me to Mayo in 2008 but he moved to Colorado. I also test positive for mitochondrial disease by biopsy at Mayo and have brain lesions and some indication of Lupus. Not diagnosed with Lupus. At ER in August I thankfully got 125 shot steroid as breathing so bad. This is a lot. Not addressing my body issues. I miss my family.