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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Junior Member
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Greetings members,
I have a lot of questions about many things in dealing with MG and hope some of you will have some answers or ideas. I will start by only asking a few questions but first will give a hopefully brief assesment of my condition. to start with around 1998 to 2000 i started having pain in my back under my right shoulder blade. saw many Dr,s but no answers. Than in 2008 I was tentatively diagnosed with ocular MG, i say tentatively because all the test they ran came up negative but I was told this was not uncommon. After about a year my double vision had cleared up and life was good. About 15 or so months ago I started having more pain in my back and shortness of breath doing simple things like walking across a parking lot or sweeping the floor. Now I also have sore and tired neck muscles as well as my left leg getting very tired easily. I have been to many Dr,s and have had thousands of dollars worth of MRI,s, Cat scans, physical therapy, full body bone scans, and more. I have recieved four shots of cortisone, which help some with the pain but not much, and two steroid injections. The end result was they said I was fine and nothing was wrong. ( I should state that with every Dr. I advised them of my diagnosis of ocular MG and they completely ignored this fact ). At this point i went back and researched MG and within about 15 minutes i pretty much had my answers. One of my questions is: I am a commercial driver with a DOT medical card, I have heard that with a diagnosis of MG that I will no longer be able to have the medical card. Does anyone know if this is true? Second question is: if this is true, can you get on Unemployment? Last question for now: what kind of work can you do having MG. I'm a 53 year old male and not sure what else I can do to earn a living. Sorry for rambling on and hope someone has some info Thanks |
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