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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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Junior Member
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I'm starting to question if my Neuro is heading in the wrong direction with MG. I was dealing with quite a bit of hypotonia right before my hospitalization and now a week after the last IVIg treatment my muscle tone has improved greatly. I've got pictures from before and took some of me calf muscles today and DANG! Everything I've found says MG does not cause hypotonia in adults. Is that correct?
Thanks in advance Pam |
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#2 | ||
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Member
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It looks to me like you may have had edema on the "before" pictures. Your socks left lines which is typical of edema and the tissue looks "puffy". Also, how much weight did you lose during your hospitalization, etc?
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"Thanks for this!" says: | AnnieB3 (01-26-2015), BARBARA356 (01-26-2015) |
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#3 | ||
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Junior Member
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I didn't loose any weight in the hospital. I had Iv fluids running the whole time and actually by day 3 was eating much better than before I went in. The whole week before going in I felt like crap and had no appetite . The only reason I don't have lines on ankles now is because I can't without them starting to cut circulation. Im confidant enough that it's due to muscle tone because the same thing is going on with deltoid muscles as well as abs. In my former life I was a ultra runner/bodybuilder so my body fat is low and I still have more muscles (despite not lifting)than a fit woman of 25 though I'm 45 not trying to be obnoxious or conceited it just happens to be the truth. I seem to build muscle by not doing much but unlike most muscle,strength doesn't come with it. Sometimes I feel like someone just put a muscle costume on me that just happens to look real. I'm also in a rehab center and still wheelchair bound and spend most of my time in bed when I'm not in therapy
Last edited by rockenmama; 01-24-2015 at 01:12 PM. Reason: Adding |
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"Thanks for this!" says: | AnnieB3 (01-26-2015) |
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#4 | ||
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Grand Magnate
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Have you shown these pics—or the real thing—to a doctor?
Try not to put labels on things. Just ask what they think. I'm sorry you're doing so poorly right now! Annie |
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