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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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01-24-2015, 10:07 AM | #1 | ||
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Does anyone have any reliable information on SFEMG.
I have just been through a nightmare experience with this test, and it was so bad that they were not able to complete the test. I had not even been aware that they would test around your eyes, which seemed to me rather pointless, when my major problems are in my arms and legs. |
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"Thanks for this!" says: | Alberta Ron (01-30-2015) |
01-24-2015, 10:51 AM | #2 | ||
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Junior Member
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Quote:
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01-24-2015, 02:17 PM | #3 | ||
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Junior Member
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Yes most unpleasant when it feels like some one is sticking a needle in your eye I did not enjoy it one little bit.
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01-26-2015, 03:01 AM | #4 | ||
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Grand Magnate
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JJ, More information please!!!
Was it just to painful? I wonder if you have a nerve problem. Some people who do have a harder time with a SFEMG. I'm sorry it was so horrible. Annie |
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01-26-2015, 04:52 AM | #5 | ||
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I warned the Doctor that I had a phobia of Hospitals, doctors and particularly NEEDLES!
He gave me a typical story of how many patients fall asleep during the procedure... he works on children, everyone is happy when they leave...yada yada. The first needle, set off my panic... tears, shortness of breath. He kept saying "think of something calming" Yeah like that was going to help. The second needle pushed me to the limit, I could feel my eye twitching... ok. But then he started moving it around and the pain went through the roof. Screaming, uncontrollable sobbing, hyperventilation, to the point where my hands were paralysed. He gave up. Not much else he could do really. It took nearly an hour before I was able to stumble out of the waiting room. Never again. |
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01-26-2015, 12:14 PM | #6 | ||
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Grand Magnate
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JJ, It's normal to have some fears in life. It sounds as though the fear you have of hospitals/doctoring/pain is something that you should really try to get some help for (not being condescending at all!).
It's when fears control our lives that we all need help. I know that you said meditation didn't work for you, but that is one great tool! I used it while I had my SFEMG. I had a horrendous one where the signal is nonstop for five minutes. I told the doctor that I would be making "unhappy noises," possibly even unearthly ones, but to keep going until I said to stop. They can't sedate you during the SFEMG because they need cooperation for the test. At some point, a doctor has to go on clinical evidence and response to treatments. I hope you'll take some time to recoup and think about what's really important to you as you move on from here. Life is too short to let our fears get in the way of living. Annie |
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"Thanks for this!" says: | juliejayne (01-26-2015) |
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