Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 03-14-2015, 11:51 AM #1
michaelunty michaelunty is offline
Junior Member
 
Join Date: Jan 2015
Posts: 16
8 yr Member
michaelunty michaelunty is offline
Junior Member
 
Join Date: Jan 2015
Posts: 16
8 yr Member
Unhappy michaelunty

Thymus removal, Does removal of Thymus remove all MG symtoms and cessations of medication?. (I understand that coming off of medications takes time,been coming off Prednisone for 6 months lol).
What other negatives/side affects manifest after removal?
michaelunty is offline   Reply With QuoteReply With Quote

advertisement
Old 03-14-2015, 03:56 PM #2
Juanitad's Avatar
Juanitad Juanitad is offline
Member
 
Join Date: May 2009
Location: Eastern TN
Posts: 314
15 yr Member
Juanitad Juanitad is offline
Member
Juanitad's Avatar
 
Join Date: May 2009
Location: Eastern TN
Posts: 314
15 yr Member
Default

Removal of the thymus does not guarantee remission of mg. I believe a lot depends on your age and the extent of your mg. I had mine at age 55 (5 years after diagnosis) and while it did not put my mg into remission, it did help me control the symptoms better. I was able to wean completely off my prednisone and cut back on the mestinon. However, while I was in the hospital, my nurse told me she had her thymectomy at age 25 and had been in full remission for about 20 years. In fact, she shocked me when she told me she had mg and had a thymectomy because I didn't see any signs of mg. I think, much like the rest of this disease, it is different for every person.

Good luck on your decision.
Juanitad is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AnnieB3 (03-15-2015), michaelunty (03-14-2015)
Old 03-15-2015, 06:58 PM #3
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
Smile

Juanitad is right. There's no way to predict how you might improve or not after a thymectomy.

Some studies say that if it's done early on in the disease process that you have a better chance at either drug-induced remission or drug-free remission.

Probably the only negatives that occur after a thymectomy are a risk of a MG crisis from surgery, pain from incisions/trauma, and a somewhat long recovery time where you need to pamper yourself (which is really a good thing).

And, of course, the scar.

I hope you will do very well and recover quickly.

Annie
AnnieB3 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 10:14 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.