Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

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Old 03-10-2015, 08:04 AM #1
suev suev is offline
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Location: Texas
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suev suev is offline
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Join Date: Jun 2009
Location: Texas
Posts: 748
15 yr Member
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For starters, I'd fire your GP and find another that is more receptive to your needs and concerns!
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Old 03-10-2015, 11:21 AM #2
AnnieB3 AnnieB3 is offline
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AnnieB3 AnnieB3 is offline
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I'd fire MG and be done with it.

Mestinon is a real problem at night for a lot of people. Bladder muscles get weaker when it wears off, and that's usually what wakes me up.

Waking up a few times at night does suck, but what's the alternative? Timespan is useful for some people, I suppose, but for others it's not enough of a dose and can be erratic.

Here's a direction: You need an overnight oximetry, at the least. A sleep study would be better.

Good grief. This lackadaisical care is getting to be a habit of physicians. Sorry, JJ.

Annie
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