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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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Junior Member
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Yes. If you Google, Myasthenia + Cytoxan there are loads of articles. It is usually used for more severe myasthenia and patients refractory to other meds.
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#2 | ||
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New Member
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Yes, Google "Revimmune + myasthenia." This is a very new and exciting treatment (Revimmune). Cytoxan is a cancer drug used in high doses to "reboot" the immune system. This drug has been developed to treat all autoimmune disease. Google "Rebooting Times HiCy" for a wonderful blog detailing an MS patient's experience with this protocol.
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#3 | ||
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Junior Member
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Yes, high-dose cytoxan is used for the 'immune reboot' protocol that was developed Dr. Drachman and Dr. Brodsky (Johns Hopkins U). AngieB on this forum has gone through the treatment and I may be another one! I just received word from Dr. Drachman's office today that they're ready to set up my first consult. I am sooo excited!
![]() Giving Myasthenia Gravis the (Re)Boot (Dr. Drachman and the protocol) On the Trail of a Cure (A history of Dr. Brodsky and the protocol) As Dr. Drachman stated at the MGFA 2007 conference, rebooting for myasthenics remains a treatment for refractory patients for now. Jennifer in ON Dx in 1986 |
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#4 | ||
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New Member
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I am a patient of Dr, Drachman. I have been for over three years for MG. After being denied Cytoxan treatment previously. He yesterday gave me the go ahead. I will more than likely get my start date by early next week. He has to run it by DR. Brodsky who is the Oncologist in the study and who is the money man for the Pharmaceutical company. I will keep you all posted.
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