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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Hi all,
I've been reading this thread and am amazed at the number of people who see Dr. Drachman. I do too. After thymectomy (due to thymoma), I'm doing fine with cellcept and mestinon. Recently am trying to cut down on the mestinon. I'm a little concerned to see that people have relapsed. I've never really felt like asking but are relapses common?? My initial time with MG (dx in Nov 05) was pretty scary (difficulty eating, feeling I was choking, and arms/legs not working) Now I'm doing fine, working full time, enjoying life. Hope I continue to do ok for a long time. I'm glad to hear that there's additional treatment out there, but hope that everyone will find something that works before having to go for the more drastic treatment. I've been on Cell cept (500 mg 2 tablets/2x per day since 3/06. Does anyone have any thoughts on this? Don't like pills in general but it seems to work for me. Lisa |
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