I've relapsed. I had a 2.5 year drug dependent remission that ended about 3 years ago. Been really bad ever since. I take Cellcept as well.

hi folks...i also take cellcept...2500 mg a day...split am and pm....also take 20 mg of prednisone...down from 60 mg..soon to go to ...20 mg one day 10 the next..and then 12/15 go to 20 mg every other day....i take mestinon as needed..i havnt had any bed effects from prednisone but weight gain...i have noticed small skin growths that the docs have said are benign..i was bad....when mg started in april..couldnt speak well or chew.....VERY hard to breathe and couldnt if i was laying down...im better now execpt for breathing is still difficult..not sure of the prednisone or the cellcept is responsible for improvment...ill see more as i wean off prednisone more......:-)

I also takes Cellcept (500mg x2, am and pm) since 8/21, plus prednisone (started at 10 mg/day, now at 75 ) and 5 x 60 mg Mestinon + 1 delayed 180mg. After 2.5 months , the only improvements are the drooping of one eye-lid and the double vision which disappeared, swallowing and chewing difficulties, plus arm muscle weakness are still present.
I also had two IVIg cures with very little effect.
Besides this, I do not appear to have any significant side-effect (yet?)
If the situation is still the same at the end of the month, my neurologist would like to try plasmapheresis but I'm not very keen for it, if they have to be repeated monthly or so…

Have you gone through the reboot? Let us know.

No, I just recently read about that therapy and I don't know how it is considered here in France. I see my neurologist in 3 weeks and will ask her. But I doubt I would qualify as I have only been affected in May and diagnosed in June and my 3 month therapy seems short to consider my MG as refractory, which appears to me as mandatory for a reboot?

No, not you neutro. The question was for notwhatIordered..