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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Hi everybody.
![]() Here's my very long story. I've had problems for years, that have gradually gotten worse. I think I've been tested for every autoimmune disease except MG. I finally saw a neurologist who seems to be taking me serious and I'm getting some blood work done. He asked for a Myasthenia Gravis panel 1, along with all the usual blood tests I've already had at least 3 or 4 times and which always came back negative. At one point they thought I had Multiple Sclerosis, but a brain mri came out normal and it turned out I was deficient in B12. Then they thought I might have RA because I have OA in my spine and shoulders along with all the other issues, but that also came out negative. I really think this matches all my symptoms, and I hope this is it. I'm sick of doctors, and tests, and not knowing what's causing the problems. I've been having problems for at least 10 years, I'm 51 now. I've had horrible fatigue since then, I don't even remember what it feels like not to be exhausted. The a couple of years ago I started having these weird bouts of overwhelming fatigue on top of the usual fatigue, where it was impossible to do anything, or even think. My arms feel like I've been lifting weights for hours. Years ago I could do about an hour of physical work before my arms started to feel this way. Over the years, the time between using my arms, and them becoming tired and aching has diminished to the point of them feeling that way all the time. I've started to lose my voice if I talk too long. But after an hour or so of resting and not attempting to talk, it comes back. There are certain foods that are hard to swallow and get stuck in my throat, but not all foods so I don't know if that would be considered a symptom of MG or not. Some days I choke on liquids when I try to drink. I don't know if that's the same as not being able to swallow though, or considered a symptom. My memory is practically nonexistent and pretty useless, I don't know if that's a part of MG or not? Anyway, I'm going to get the lab work done tomorrow, and should have the results within a week. Sorry for the mile long post. |
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"Thanks for this!" says: | richimahan (12-16-2014) |
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