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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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I was referred to Dr. Janice Massey at Duke in June, and I have been trying to make an appointment with her since June 12th with no luck. I realize I will have to wait several months to see the doctor after I make an appointment, but I can't even make an appointment.
![]() She apparently did order the SFEMG, which I will have done this Friday, but I don't have any way to get the results unless I can get in to see her. My Endo at Duke was the referring doctor, and I'm sure she will get a copy of the results, but she is not qualified to evaluate me for MG, which is why she referred me to Dr. Massey. I am way beyond frustrated by the constant roadblocks I am getting from the Neuromuscular Clinic, and their complete unwillingness to even try to make an appointment for me. At this point, I think I will just get a copy of the results from my Endo when I see her on August 11th, and try to get a referral to another doctor. Does anyone know of a good MG doctor in North Carolina? I am a student at UNC-Greensboro, and I have the student insurance, so it has to be a doctor in NC. Any ideas? Thanks. Rose |
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