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Old 09-03-2015, 09:57 PM #1
4-eyes 4-eyes is offline
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I've used Hizentra for the last 18 mos. I think there is a thread on it. In general I like it. The side effects are the same for me. My insurance has refused to fill my script as of July, saying it's not medically necessary, so be prepared for obstacles. Let me know if you need more info.

Good luck!
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Old 09-03-2015, 10:01 PM #2
bny806 bny806 is offline
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Thanks! i'm sad to hear it's the same side effects.. my veins always hurt for a few days afterwards, i wouldn't think that part would happen with it does it?

I have used Gammunex the past 4 years.. is it more expensive than that + the nursing costs of an infusion center? It seems like insurance would like to not have those additional costs. So do you get symptoms every week now, i don't want to feel crumby weekly instead of every 3 weeks!
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Old 09-03-2015, 10:34 PM #3
4-eyes 4-eyes is offline
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It can cause hot swollen welts in the skin that can be sore for a few days. Not every time, but sometimes. Yes, I have symptoms to a varying degree each week. I prefer Gamunex IV and am trying to go back to that since insurance denied my appeal for Hizentra. I have a port anyway, so so much less uncomfortable for me.

If I was going to an infusion center, which I've never done, I would probably find the Hizentra more appealing. Independence takes precedence for me.
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"Thanks for this!" says:
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