Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 10-08-2015, 08:37 AM #9
juliejayne juliejayne is offline
Member
 
Join Date: Apr 2014
Location: Dordrecht, Netherlands
Posts: 225
10 yr Member
juliejayne juliejayne is offline
Member
 
Join Date: Apr 2014
Location: Dordrecht, Netherlands
Posts: 225
10 yr Member
Default

It is of course concerning that your GP has "limited experience" with MG, but then 99% of GPs are in the same position. I hope that he is liaising with an expert, with more knowledge.

For a GP to give a dx of "seronegative MG", would be unusual, that sort of decision should really be left to an expert Neurologist.

Your understanding re Mestinon is correct, but some people can and do get along fine for many years on just Mestinon.
And, as of this moment, there is NO treatment for Mestinon, that cures it. All teatments simply address the symptoms.

Simply put:
Mestinon, gives the ACH longer to work.
Immunosuppressants, suppress the anti-bodies that attack the receptors (but suppress your immune system in general)
IVg simply swaps out the blood or plasma with the bad antibodies, for blood or plasma without them.
juliejayne is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
New to This and Frustrated bayston New Member Introductions 3 01-13-2013 06:33 PM
Frustrated Carina New Member Introductions 3 01-11-2013 01:03 AM
Frustrated t97tab Traumatic Brain Injury and Post Concussion Syndrome 11 12-10-2012 03:41 AM
frustrated! Cass30 Peripheral Neuropathy 3 04-11-2012 04:44 PM
Frustrated suz66 Reflex Sympathetic Dystrophy (RSD and CRPS) 5 07-16-2010 02:57 PM


All times are GMT -5. The time now is 04:52 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.