Oh how I wish I could take this into my next neuro appointment... Been to a neuro-ophthalmologist... blamed dv on blinking, but I still have the DV, though no more blinking. Didn't seem able to check for fatigable muscle weakness.

Neuros have seen fatigable weakness on a clinical exam, but the bloods were negative.

Couldn't complete the tests at the pulmonologist due to fatigable breathing issues.

No droopy eyes, so I clearly don't have MG!!!!!!

Dutch specialists suck.

Everything I read on MG only says "usually" droopy eye. I don't know if you don't have that if it excludes MG. LEMS is a simple antibody test.

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What you have read is correct. A large percentage of MG sufferers don't have a droopy eye. However my experience is that without the classic droopy eye, it is much much more difficult to get a diagnosis.

You said. "No droopy eyes, so I clearly don't habe MG!!!!" And assumed you meant it. I didn't read the sarcasm. I understand now. Yes. I think my doc is stuck on MG only BECAUSE of the droopy eye. She won't do a lot of other tests even though I am seronegative. I had a positive LEMS test but she said it must be false positive because of the lab where it was done. Now it's neg but I am immune supressed. I have such lower limb weakness so bad it really seems more the real thing then MG. Just glad mestinon is working for me.

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Sorry... yes sarcasm... unfortunately there is no smilie to indicate exasperated frustrated sarcasm. Sorry.