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MuSK came back negative

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Old 11-18-2015, 09:46 AM #1
mg_candi mg_candi is offline
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mg_candi mg_candi is offline
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You said. "No droopy eyes, so I clearly don't habe MG!!!!" And assumed you meant it. I didn't read the sarcasm. I understand now. Yes. I think my doc is stuck on MG only BECAUSE of the droopy eye. She won't do a lot of other tests even though I am seronegative. I had a positive LEMS test but she said it must be false positive because of the lab where it was done. Now it's neg but I am immune supressed. I have such lower limb weakness so bad it really seems more the real thing then MG. Just glad mestinon is working for me.

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Old 11-19-2015, 06:22 AM #2
juliejayne juliejayne is offline
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juliejayne juliejayne is offline
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Quote:
Originally Posted by mg_candi View Post
You said. "No droopy eyes, so I clearly don't habe MG!!!!" And assumed you meant it. I didn't read the sarcasm. I understand now. Yes. I think my doc is stuck on MG only BECAUSE of the droopy eye. She won't do a lot of other tests even though I am seronegative. I had a positive LEMS test but she said it must be false positive because of the lab where it was done. Now it's neg but I am immune supressed. I have such lower limb weakness so bad it really seems more the real thing then MG. Just glad mestinon is working for me.

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Sorry... yes sarcasm... unfortunately there is no smilie to indicate exasperated frustrated sarcasm. Sorry.
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mg_candi (11-19-2015)
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