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Old 11-17-2015, 09:41 PM #1
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cait24 cait24 is offline
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Join Date: Sep 2012
Location: Newtown, PA
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Join Date: Sep 2012
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Default muscle biopsy anyone?

Hi. I have not posted in a while. I am double seronegative, sfemg positive MGer. I respond well to Mestinon and IVIG. All my doctors have always said I have something else going on as well. They evaluated for Lupus, RA, dermatomyosotis. All negative. A funny antibody came up on one of the panels - hY5 RNA of Ro and I was diagnosed with inflammatory arthopathy not RA. My symptoms continue to progress but I am stable. The doctors are doing a muscle biopsy next week and feels certain I have mitochondrial myopathy. Any one else here evaluated or diagnosed with mitochondrial disease?
thanks
kathiw
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