I've known I had something since high school but the symptoms weren't too bad that was 90-91 I just altered my ability to work. Then in 05 it got to the point I couldn't pick up my new born son and that's the year I was diagnosed mg positive and put on mestinon.my family knows but I don't talk about it unless they or someone asks. Most of my friends do not know I have mg and are surprised I do cause I do all my normal activities and am considered a work-a-holic. So far the one and only crisis I've had was in the back of an ambulance and they just proped up the back that helped tremendous.

We all want to fit in. It's human nature. Many people will comment if it's an illness they can relate to. If they can't it's often common to see them go quiet. It happened when I lost my mom as well. Those that lost a parent or close loved one had to tell me their story. If you can relate then we could move past it together. If not then it got uncomfortable and I felt they wouldn't understand and they didn't know how to help as a friend. It creates a gap. A few of those gaps and you can still be friends. Too many gaps and you feel you are no longer connected to the person and it's easy to see lifetime friendships go away because we no longer feel we have things in common.

I have found if I try to close the gaps with other things we had or could have in common the. I can save a friendship. Maybe just go to lunch and talk. If it's shallow and one sided it probably won't last. That's true of most relationships I think...

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People mainly ask me because I wear a patch so I don't see double. I went from perfect 20/20 vision to severe horizontal and vertical double vision and blurriness. Although I am now swallowing close to perfect and having just low end MG weakness, my vision has not improved at all. I get no break, ever. From the time I wake up until I go to sleep, my vision is bad. I am really hoping that there is something that eventually can fix this, whether meds, the thymus removal surgery or time. My GF that left me the day after I got out of the hospital after only visiting me once in ICU and dropping me off at the ER still hasn't spoken to me much. We much civil small talk and I miss her, but I'll never understand how anyone could walk away at that point. Especially after over 6 years living together. We had our issues that we were reconciling, but I could never walk away from someone at such a horrible time. But I guess all people are different and eventually I'll find someone that truly cares about me, MG or not.

Friends, when will I ever learn!

I finally broke down and sent a message to a friend of many years which told her about my having MG. I thought this would offer an explanation for me being kind of quiet in the communication department lately. We have been good friends for almost 15 years.

There was no reply from my friend to my email two days, which is not typical. Today on Facebook my friends only post is a cartoon about "letting go of toxic people is a major step towards being happier..."

I think now I am regarded as "toxic". Sigh. I don't think people want to know when you are really sick with something that is difficult and hard.

"letting go of toxic people is a major step towards being happier..."

This of course being so true. Your former friend being the toxic one not you time for you to let go of that particularly noxious person.

Most of my friends have stepped up quite graciously. We rarely discuss it and I just go about the business of day to day living without complaining.

I find that the more I discuss my MG, the more I give strength and it seems to loom even larger. I try to down play it as much as possible so my friends won't treat me any different than they used to.