Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

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Old 11-26-2015, 12:10 PM #1
Kim12 Kim12 is offline
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Join Date: Apr 2011
Location: California
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Kim12 Kim12 is offline
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Join Date: Apr 2011
Location: California
Posts: 51
10 yr Member
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I did not tell anyone except for my family for many years. I also tried my best to not let MG be the center of my world. When I had to medically retire as an attorney, I told people that I just quit. When I could no longer carry my surfboard up the beach, I let the cat out of the bag. Expecting the worse, I got the best. One dear friend immediately told my husband that if anything ever happened to him, his family would take care of me. Although most of my friends don't understand MG they now understand that it isn't them when I refuse an invitation.
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Diandra (11-27-2015)
Old 11-29-2015, 03:36 PM #2
jvaagen jvaagen is offline
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jvaagen jvaagen is offline
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I've known I had something since high school but the symptoms weren't too bad that was 90-91 I just altered my ability to work. Then in 05 it got to the point I couldn't pick up my new born son and that's the year I was diagnosed mg positive and put on mestinon.my family knows but I don't talk about it unless they or someone asks. Most of my friends do not know I have mg and are surprised I do cause I do all my normal activities and am considered a work-a-holic. So far the one and only crisis I've had was in the back of an ambulance and they just proped up the back that helped tremendous.
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