Home Menu

Site Navigation



Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

NeuroTalk Support Groups > > >

Freaking out - IVIG denied (after 5 years)

Reply
Page 3 of 3 12 3
 
Thread Tools Display Modes
Old 01-20-2016, 10:48 PM #21
limpy's Avatar
limpy limpy is offline
Member
  
Join Date: May 2012
Posts: 224
10 yr Member
limpy limpy is offline
Member
limpy's Avatar
 
Join Date: May 2012
Posts: 224
10 yr Member
Default
So relieved that you got Ivig approved.
You sound like me when I had to practically be ready to kick the bucket before I could get plasmapheresis. It takes a while to get back to 'normal'.
limpy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
bny806 (01-21-2016)
Old 01-21-2016, 10:20 AM #22
bny806 bny806 is offline
Member
  
Join Date: Nov 2011
Posts: 576
10 yr Member
bny806 bny806 is offline
Member
 
Join Date: Nov 2011
Posts: 576
10 yr Member
Default
Thanks Limpy... I got really weak last night, I think I overdid it, since I have been so weak the past few weeks, I just had to catch up around the house, and i was like a big limp noodle... it worried me as my breathing started to get bad.. turns out i was getting my kids respiratory illness too.. so I'm now fighting that too.. hopefully that IVIG will kick in some before the cough gets worse .. It makes me quite irritated that I am having such a big set back thanks to an insurance company GRRRRRRRR
bny806 is offline   Reply With QuoteReply With Quote
Old 01-23-2016, 12:15 PM #23
limpy's Avatar
limpy limpy is offline
Member
  
Join Date: May 2012
Posts: 224
10 yr Member
limpy limpy is offline
Member
limpy's Avatar
 
Join Date: May 2012
Posts: 224
10 yr Member
Default
[QUOTE=bny806 It makes me quite irritated that I am having such a big set back thanks to an insurance company GRRRRRRRR[/QUOTE]

I quite agree. If any of those people doling out the treatments could live in our bodies for just twenty four hours, I think there would be a big change in the way things are handled. Sorry you are having to cope with all this.
limpy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
bny806 (01-23-2016)
Old 01-23-2016, 05:07 PM #24
bny806 bny806 is offline
Member
  
Join Date: Nov 2011
Posts: 576
10 yr Member
bny806 bny806 is offline
Member
 
Join Date: Nov 2011
Posts: 576
10 yr Member
Default
Thanks Annie.. I"m just thankful I got it this time.. and am starting to get stronger... gave more IVIG last night.. of course I've come down with this respiratory bug and my cough is so weak (like it was years ago)... thankful I didn't end up in the hospital last week!!! have a good weekend!
bny806 is offline   Reply With QuoteReply With Quote
Reply
Page 3 of 3 12 3

« Previous Thread | Next Thread »

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Denied Savella, now denied Cymbalta BioBased Reflex Sympathetic Dystrophy (RSD and CRPS) 11 07-15-2015 04:29 AM
Freaking out!!!!!!! nicd577 Social Security Disability 10 12-13-2013 09:34 PM
O.T. I'm freaking out!!! mbrook Traumatic Brain Injury and Post Concussion Syndrome 20 01-12-2012 12:00 PM
I'm freaking out! Gabs1307 Myasthenia Gravis 4 12-18-2011 11:28 PM
Should I be freaking out? jannaw Peripheral Neuropathy 24 06-17-2008 09:29 PM


All times are GMT -5. The time now is 07:46 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home