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Old 06-07-2016, 09:00 PM #1
Snoel Snoel is offline
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I'm just curious to hear on how many of you are on weekly Plex's/Plasmapheresis, I just can't go past 7 days or symptoms get pretty evident weakness & pain in muscles in general, facial numbness, slurry speech by midday...

I'm going on my 63rd tomorrow (started Apr 2015) they exchange 4 liters! now my iron and red blood cells are extremely low due to all plexs...
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Old 06-08-2016, 10:00 AM #2
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I get mine every other week, and I'm usually run down by the time it rolls around.
I used to have them three times a week and that was not even enough, because when I had to wait two days over the weekend, I had a bad crash and had to be taken to the ER.
The only thing I know that has made the difference, all things considered, is that I had Rituxan, and I think the residual effects of that has allowed me to go longer between treatments.
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Old 06-08-2016, 03:08 PM #3
AnnieB3 AnnieB3 is offline
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Snoel, Have they checked your kidney function?

Annie
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Old 06-09-2016, 08:00 PM #4
Snoel Snoel is offline
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Quote:
Originally Posted by AnnieB3 View Post
Snoel, Have they checked your kidney function?

Annie
I think they do every week, they take 2 vials of blood before every plex, I had low Iron levels and red blood cells were very low and started taking 600mg of Ferrous Fumarate daily. My red blood cell count went from 99 to 118 in the last 3 weeks, I still feel very SLUGGISH I'm weaning off preds I'm down to 1mg and hoping by this time next week to be off! My Rituxan hasn't improved things so far, I've had my last infusion may 10th my specialist told me it could take up to 8 weeks to kick in...
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