Quote:
Originally Posted by AnnieB3 View Post
I know that many people love the NHS, but I keep hearing such bad stories!
Any infection can make MG worse. I wonder if your daughter might have some kind of immunodeficiency: IgA, IgG, IgE, IgM, and IgD. I know that kids get sick more often, but it sounds as though your daughter does more often.
I hope you will get her to the hospital right away if she can't move well, breathe well, or swallow, or is generally overall weak.
I hope both of you will be tested for B12 and D deficiencies. They're very common for people with autoimmune diseases. Watch out for any thyroid symptoms as well.
I hope your daughter takes naps after school. That would really help her.
Going to a pulmonologist is useful, too. They can do a baseline reading for breathing (MIP and MEP are specific to neuromuscular diseases).
Does she use two puffs twice a day while having a lung infection? I need to do that, which is written on my Flovent inhaler prescription. You might want to ask the prescribing doctor about that.
Washing hands a lot helps while in school too, to stop those germs from spreading! Or bringing a product such as Purell hand sanitizer to school.
I hope she will get some help soon!!!
Annie
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Try taking her to an adult neurologist.