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Old 07-20-2016, 09:21 PM #12
Mw40love Mw40love is offline
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Join Date: Jul 2016
Posts: 14
5 yr Member
Mw40love Mw40love is offline
Junior Member
 
Join Date: Jul 2016
Posts: 14
5 yr Member
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Quote:
Originally Posted by AnnieB3 View Post
I know that many people love the NHS, but I keep hearing such bad stories!

Any infection can make MG worse. I wonder if your daughter might have some kind of immunodeficiency: IgA, IgG, IgE, IgM, and IgD. I know that kids get sick more often, but it sounds as though your daughter does more often.

I hope you will get her to the hospital right away if she can't move well, breathe well, or swallow, or is generally overall weak.

I hope both of you will be tested for B12 and D deficiencies. They're very common for people with autoimmune diseases. Watch out for any thyroid symptoms as well.

I hope your daughter takes naps after school. That would really help her.

Going to a pulmonologist is useful, too. They can do a baseline reading for breathing (MIP and MEP are specific to neuromuscular diseases).

Does she use two puffs twice a day while having a lung infection? I need to do that, which is written on my Flovent inhaler prescription. You might want to ask the prescribing doctor about that.

Washing hands a lot helps while in school too, to stop those germs from spreading! Or bringing a product such as Purell hand sanitizer to school.

I hope she will get some help soon!!!

Annie
Try taking her to an adult neurologist.
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