Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

 
 
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Old 07-03-2016, 03:53 PM #8
Sandpiper Sandpiper is offline
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Join Date: Jul 2016
Posts: 1
8 yr Member
Sandpiper Sandpiper is offline
Newly Joined
 
Join Date: Jul 2016
Posts: 1
8 yr Member
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Hi everyone, this is my first post. Have been treated for Seroneg MG for 2 years due to 2 positive Sfemg done a year apart at 2 different medical centers. No improvement in symptoms despite everything they threw at me, even Plex. Was told last week that I have a "variant" on my dok7 gene. Problem is they have not identified this variant before so not sure what it means.
Went to Mayo at end of April and Annie I laughed when you wrote that they need to discover kindness. So eloquently phrased.
Have been trying to read everything I can so appreciate info. Have a great 4th!
Sandpiper
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pingpongman (07-03-2016)
 

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