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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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Junior Member
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Hi everyone! I am posting this here because I am truly interested in feedback and opinion, good or bad! I stopped my mestinon a few days before and last Friday I took my first 100mcg Huperzine A, In the morning after coffee and before smoothie.
So far I am fairly impressed. Let me say that my MG is mild. I know how lucky I am with that, and I apologize for those who aren't. But mild or not, it affects me every single day. If I sat at my desk all day (which is what I do) I will still not be able to walk completely upright by 5 or 6 in the evening. The first day I was up till 10 and was still upright. I haven't been up that late since. What I am most curious to test is this weekend. Saturday will be yardwork, as much as I can do. Will I be completely useless Sunday afternoon like usual? I cant wait to see. Thank you all for letting me share! |
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"Thanks for this!" says: | AnnieB3 (08-11-2016) |
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#2 | ||
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Member
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Quote:
Interesting. Please let us know more!!! FREDH |
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"Thanks for this!" says: | AnnieB3 (08-11-2016) |
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#3 | ||
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Grand Magnate
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Sheri, I hope it works better than Mestinon for you. It is only a "helper" drug (cholinesterase inhibitor) though. It doesn't address the underlying autoimmune process.
Don't overdo it out there! Annie Huperzine A: Can it treat Alzheimer's? - Mayo Clinic |
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