Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


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Old 09-12-2016, 05:38 PM #9
Caprice Caprice is offline
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Join Date: Jul 2016
Posts: 9
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Caprice Caprice is offline
Junior Member
 
Join Date: Jul 2016
Posts: 9
5 yr Member
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Quote:
Originally Posted by Piper123 View Post
Hi I'm new to the site, but have probably had mg years b4 I was diagnosed. I also have lupus which came probably 10 yrs b4 mg. I'm middle aged female . I try to keep active which I think helps. I was put on 24/7 oxygen a couple yrs ago . As my neurologist has said not many people w/ mg have chronic low 02. I wanted to asked if anyone else here is on oxygen? Look forward to meeting u all and reading ur post. Ty for any help
Yes, although not diagnosed with myasthenia, I'm on oxygen at night. I have a CPAP machine for mild sleep apnea, but do not use it as it made my breathing worse. I have been breathless for nearly eighteen months and was sleeping only 2 hours a night before waking up with adrenalin rushes. So my doctor prescribed oxygen. I have all the symptoms of myasthenia, but my EMG tested negative.
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AnnieB3 (09-15-2016)
 

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