I was doing physical therapy for my frozen shoulder and not able to to really make any "progress". I was using 3lb weights (pathetic!) and when I tried after a few months to move up to heavier weights, I was not able. Now my other shoulder is in bad shape and I am still using the 3lb weight. No one has been able to tell me how much exercise to do but I try to do some... but my lack of progress is what kinda gave the doctors a clue that something else was wrong.
How much exercise are MG'ers supposed to do?

That is a very good question about the exercise. I suppose the best answer would be that we do what we can, without over doing it, since doing too much can lead to a couple of very bad days. Try spacing your exercise out. Do a little, then rest until the muscles have recovered, then do some more. Spread your exercise out through a whole day, little at a time. That might keep muscle tone up, but hopefully won't fatigue the muscles or bring on a worsening of MG symptoms.
Anybody else got a better idea? I'm open to suggestions.

Yep Im open to suggestions to, I went to the physio, and it went well, she said to start of on 10 minute walks(I love walking thru the bush) but no more than 10 minutes, so I went for my 10 minute walk, but think I will have to cut it down to 5, ahh well, little steps, one day I may be able to go bush walking again.

Hi
I think the amount of exercise is very individual for MG. I'm trying to walk, but when I'm going to worse, I walk just 1 or 2 minutes and my strenght is gone. I didn't find yet how to balance the fatigue x exercise. I used to swimm, but now it's not possible.
I read one article about myasthenia and exercises:
http://www.mgfa-mgnet.org/html/exercise.htm
and, although it's not recent, it has things to think...
Hope everybody is well.
Bluestone

Spoke with my internist the other day and he HIGHLY recommended excercises - daily excercises for MG.....my neuro on the other hand had told me time and again to only do 80% of what I am capable of........my hema told me to excercise as well -, due to the roids and the havos they wreak on the body.......so I am totally confused

As for the fibromyalgia - what are the symptoms? How do you know if you have it? These stupid autoimmune diseases are just crazy! I am so frustrated, b/c I know I am in pain and yet no one listens....just tells me that pain isn't usuallu associated with MG - tell that to my back! LOL

How are you? Are you OK?

Big, big hugs!
Erin