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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Grand Magnate
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Clare, Those drugs will only work for things such as asthma, etc. Flovent, however, would make MG better. But, if you are already on a steroid (not sure which immuno you are on), mixing inhaled with tablets can make MG worse (temporarily).
Have you had an overnight oximetry? Have you been checked for sleep apnea? Have you been evaluated by a pulmonologist? Now that would be a very good idea. Just throwing more drugs at you isn't necessarily what you need. Also, have you had an echocardiogram? Some people have pulmonary hypertension, which makes breathing in and out difficult. PLEASE have that checked for. Since you have lupus, have they done any coagulation studies, such as APS? Doctoring may be different in the UK, but diseases don't change from country to country! It sounds as though you need a thorough evaluation of why you aren't breathing well. That would include both a pulmonologist and cardiologist. I hope you can figure this all out. Annie |
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