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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Okay, I found more of the letters, and the letters seem to be two different studies. One says that I had an interest in the Research Program on Genes, Environment, and Health. I never entered my name in a such a study. Then, there is a packet to move forward with the study. The other paper says that "the flash drive . . . included the name of the nuclear medicine study in which you participated, and information about the isotope product administered to you." In some ways the last one sounds like it was a CTscan or MRI because it says the "flash drive did not include the results of your test... diagnosis, prognosis, or other clinical information." The words: clinical information, study, participated, and "information about the isotope product administered to you -- makes it seem as if I was in some study that used some type of experimental product. If they had used the words administered, received, I would think I was given a dye to do a test. |
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