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Old 07-16-2017, 11:47 PM #4
winic1 winic1 is offline
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Join Date: Feb 2011
Posts: 295
10 yr Member
winic1 winic1 is offline
Member
 
Join Date: Feb 2011
Posts: 295
10 yr Member
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But on a lung x-ray, they tell you to take in a deep breath and hold it.
So, of course your lungs are full of air.
I breathe in too deeply? They told me to!
So, can MG make a chest x-ray look like COPD?

No one medical has ever cared about my shortness of breath. Strangers on the phone will notice it, and mention it, and ask me if I'm okay, when I am not noticing it because it is normal for me.

Doctors--nope. Tried to get one to listen to me, he told me that when people are paying attention to how they breathe, it's usually anxiety and best treated with anti-anxiety meds.....and that's when I told him off. No, you a-hole, I don't have trouble breathing because I worry about it, I only worry about it when I realize that I am having trouble breathing. And most of the time I don't worry about it, I just become aware that it is time to manage it.

They don't like being told off.

Honestly, I do not know how so many incompetent, uncaring doctors have concentrated in one place. Theorize that it's because we are an hour or so outside of NYC, and they all wanted to get into the big NYC places (many did part of their education there), but couldn't get hired there, so they settled here, as close as they could. So, basically, we have all the rejects. No idea, really, but it makes it more fun to imagine so.

go to see the fancy neuromuscular specialist at Yale on Friday. Going to spend the week trying to extract my test results from that damn portal. I can see all the recent bloodwork on the portal (one result at a time), but when I went to print it, I only got 2015, which I hadn't even been looking at. Hoping that in my older copies of stuff, I have the other things like the pulmonary testing, because when I had called them to get that just a month after having it done, they were all confused and finally confessed that for some reason it had been sent to the archive caves already (yes, they really send old medical records to storage in some flippin' caves somewhere in the region, and it takes many weeks to get them extracted. WHY then sent my recent tests directly to the caves without putting them into the computer first, or even sent them when they weren't old at all, no one could tell me. I so wish I was making this up. Unfortunately, I am not.) Office people are crabby, so if I need them to pull any of it up for me, oh well, probably not gonna happen.

Either that, or that report is someone else's that got mixed up with mine. That happens all the time. ALL the time. It's really scary how bad they are.
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