Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 08-31-2017, 03:20 PM #4
Maniac Maniac is offline
Junior Member
 
Join Date: Aug 2017
Location: Maine
Posts: 12
5 yr Member
Maniac Maniac is offline
Junior Member
 
Join Date: Aug 2017
Location: Maine
Posts: 12
5 yr Member
Default

AcHr negative as well as musk. I have the results as I was given them to take to Boston, but they have no value on them, only <90 was negative. I have had all blood tests done with my PCP. You name it, they have done it. I did have brain MRI, no lesions. Neck MRI before my cervical fusion in January, they didn't see anything there. I was re-hospitalized 7 days after surgery, inability to swallow. Was there 11 days and passed modified barium swallow on 3rd attempt. Still have so much difficulty swallowing.

I have not seen neuro ophthalmologist. It is like nobody believes me. I had a PFT test but that was fine. I work in a rehab dept at a small hospital. I checked my O2 sats the other day as I felt I could not take a deep breath. It was 88 but came back up with rest. Walked again yesterday morning, went down to 82.

I am so discouraged and am so tired of feeling poorly. I am waiting on another appointment as they are sending me to another neuro. May be a long wait. So tired of being so fatigued and heavy feeling. Stairs are hard and so is getting up from a chair. I don't want to have MG, but they need to figure something out.

Thanks for listening Annie.
Maniac is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AnnieB3 (08-31-2017)
 

Tags
difficulty, muscles, negative, swallow, test


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 04:15 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.