Home Menu

Site Navigation



Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

NeuroTalk Support Groups > > >

Anyone on Soliris?

Reply
 
Thread Tools Display Modes
Old 03-12-2020, 10:26 AM #1
Spike Spike is offline
New Member
  
Join Date: Jul 2010
Posts: 4
10 yr Member
Spike Spike is offline
New Member
 
Join Date: Jul 2010
Posts: 4
10 yr Member
Default
I have been on Soliris for 15 months. Initially the change was very dramatic, but that may have been due to both the loading dose (every week) and the residual effects from weekly IVIG. At the beginning I was also taking CellCept (2g/day) and prednisone (30mg/day). After three months I was functioning well enough to start reducing my predinisone.

I am now down to 2.5mg/day of prednisone. I've been on that dose for 2 months but will probably need to increase it a bit since I've become weaker.
Spike is offline   Reply With QuoteReply With Quote
Reply

Tags
expect, respond, soliris, treatment, tube

« Previous Thread | Next Thread »

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
A new MG orphan drug—Soliris AnnieB3 Myasthenia Gravis 0 06-18-2014 09:55 PM


All times are GMT -5. The time now is 07:35 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home