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Old 05-17-2018, 08:36 PM #11
azwild azwild is offline
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Join Date: Jan 2011
Posts: 15
10 yr Member
azwild azwild is offline
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Join Date: Jan 2011
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Default pulmonologist
yes i have both a pulmonologist and infectious disease pulmonologist the infectious guy is affiliated with st josephs which barrow is a part of the campus
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Old 05-17-2018, 11:55 PM #12
Nac Mac Feegle Nac Mac Feegle is offline
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Location: Phoenix, AZ
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Nac Mac Feegle Nac Mac Feegle is offline
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Join Date: Nov 2015
Location: Phoenix, AZ
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Default I can recommend Barrow, they diagnosed and treated me
I'm in the Phoenix Metro area, too.

I was referred to the (Gregory W.) Fulton Center for Neuromuscular Diseases by a Otolaryngologist that recognized the symptoms I was having.

They started me on Mestinon, and it started working, but I took a bit of a downturn after a few days, and they decided to do Plasmapharesis on me. I went in to Barrow in a wheelchair, and walked out 6 days later.

Barrow is considered one of the top Neurological institutes in the country, so you'll be in good hands.

There is a chapter of the Myasthenia Gravis Foundation of America (MGFA) that meets in Tucson and Phoenix. They're inactive over the summer, but there are people that you can call for info. The website is below.

Arizona Chapter of the Myasthenia Gravis Foundation

Good luck.
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Old 05-18-2018, 11:02 AM #13
azwild azwild is offline
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azwild azwild is offline
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Default thanks for the link
my wife works in that building in scottsdale, not sure where they are located
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