Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

 
 
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Old 05-17-2018, 06:28 PM #8
AnnieB3 AnnieB3 is offline
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Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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It's your post. You can talk about whatever you want to!

There's something called autoimmune polyglandular syndromes.

Polyglandular Autoimmune Syndromes: Immunogenetics and Long-Term Follow-Up | The Journal of Clinical Endocrinology & Metabolism | Oxford Academic

Some people have more than one autoimmune disease, especially those which affect the endocrine system. Many are calling it the neuroendocrine system.

You might be a candidate for IVIG. I doubt that steroids would be good, or immunosuppression (due to CML). I know someone with CML. Diet is very important in those with cancer. At least a no-sugar diet helped that person. I'm sorry you have that cancer. Are they absolutely certain of that?

There are a lot of us here who know what it's like to have more than one disease. Grave's is common among people with MG.

Life can be challenging enough with one issue. I hope you have a good support system. A lot of people aren't comfortable talking about diseases, or how they impact one's life. But we need that support, even if that only involves someone bringing us dinner or sitting and talking about whatever.

I'm sure that Barrow will take great care of you!!!


Annie
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