Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 10-20-2018, 03:54 PM #1
johntdyer johntdyer is offline
Newly Joined
 
Join Date: Oct 2018
Posts: 1
5 yr Member
johntdyer johntdyer is offline
Newly Joined
 
Join Date: Oct 2018
Posts: 1
5 yr Member
Default Solaris

Is anyone on Solaris ? I’m looking for feedback. It seems to be so new I can’t find anyone talking about their treatment on any of the usual groups.


So my history.. I recently underwent a relapse after we tried to ween me of Cellcept. After relapsing bad we went back to full dose on everything.

* 2000mg/day cellcept
* 20 prednisone,
* 60mg mestinon 4-5 / day
* Ivig 3 days every three weeks

However even with all this for 3 months I still often have symptoms. At my last doctor is suggesting I try Solaris since I’m not seeing anything from Ivig. I’ve been doing my research and the side effects look pretty scary. I have great insurance so if I proceed it will be covered 100%...

Any feedback from someone that’s been on the treatment ?




Sent from my iPhone using Tapatalk
johntdyer is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
azwild (10-24-2018)
 

Tags
cellcept, feedback, ivig, solaris, treatment


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 08:13 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.