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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Is anyone on Solaris ? I’m looking for feedback. It seems to be so new I can’t find anyone talking about their treatment on any of the usual groups.
So my history.. I recently underwent a relapse after we tried to ween me of Cellcept. After relapsing bad we went back to full dose on everything. * 2000mg/day cellcept * 20 prednisone, * 60mg mestinon 4-5 / day * Ivig 3 days every three weeks However even with all this for 3 months I still often have symptoms. At my last doctor is suggesting I try Solaris since I’m not seeing anything from Ivig. I’ve been doing my research and the side effects look pretty scary. I have great insurance so if I proceed it will be covered 100%... Any feedback from someone that’s been on the treatment ? Sent from my iPhone using Tapatalk |
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"Thanks for this!" says: | azwild (10-24-2018) |
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