Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


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Old 02-20-2019, 06:42 PM #1
susan_mela susan_mela is offline
Junior Member
 
Join Date: Feb 2019
Posts: 18
5 yr Member
susan_mela susan_mela is offline
Junior Member
 
Join Date: Feb 2019
Posts: 18
5 yr Member
Default Newbie to Forum

Hey - to introduce myself - I was officially diagnosed in 09 after probably having had MG for at least 13 years. I had some Barre similar virus in High School for a year, which may have been related. See ** blog for my diagnosis story, and hopefully other updates.

I'm joining now, because I have become isolated through not driving, having energy to join classes out of house, and not walking well in general. I thankfully have a good doctor, but after a very rough year since starting IVIG, I could really use contact with others who know what having the disease is like. I am thankful not to have had further crisis since a year ago, but my quality of life has never gotten back up it's to pre-crisis state.

Last edited by Jomar; 04-14-2020 at 11:49 AM. Reason: per guidelines on new member linking
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