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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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04-28-2019, 02:39 PM | #1 | ||
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New Member
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I was diagnosed with MG 4 weeks ago.Had droopy eyelids, each eye closed and one eye turned towards my nose. After all that cleared up, I’m now dealing with DV,fatigue, occasional shortness of breath. Now I’m on Mestinon and Prednisone. I reduced the Prednisone dose myself because of the side effects. I’m a cancer survivor, a widow since November. I don’t have any family except for my adult son and I am very grateful for him. We are mourning the death and now this. I’m angry, do not want to accept it, and having difficulty dealing with the changes. I don’t have anybody that I can talk to that can understand what I’m feeling. I don’t even understand it. Any thoughts?
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04-28-2019, 10:05 PM | #2 | ||
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Junior Member
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I hope you'll ask your GP to send you to a neurologist, maybe? Keep a list of any and all symptoms you have , how often, how bad, etc. I love my doctors, but if I am having symptoms that they can't or won't address, I have to do that for myself.....and I do.....my health, or lack thereof, belongs exclusively to me.
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