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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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New Member
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Hi everyone.
I am a new member . I’ve been struggling with intermittent limb weakness, excessive fatigue , muscles have changed and are barely visible. Choking, weak neck muscles for about 4 years now . They initially tested me for ms. Mri’s are clean and my initial strength is always good when tested . I am a former active exerciser who was suddenly unable to walk more than a few steps. My weakness started in my left leg and now I am feeling it also in my right leg and hand . This has been an extremely frustrating process since I am constantly being labeled as anxious or stressed. Recently I acquired ptosis of my right eye / eyebrow area. I was hoping that the ptosis would facilitate a diagnosis . I had an emg and some blood work done by a neurologist. He was about to send me out the door again until he called his supervisor and she mentioned Myesthenia . I had read about mg and suddenly it all made sense! If anyone can please help me interpret these labs , since the neurologist won’t see me until November ! 3 months away ! |
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#2 | ||
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Junior Member
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Welcome to the forum. Go ahead and post any blood work results you have, many folks here do. Jim
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#3 | ||
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New Member
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Sorry, it took me a minute to figure out the attachments. This week I've had trouble feeding myself and using my right hand/arm. Thank you.
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#4 | ||
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Junior Member
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Rfarias, first off, I’m no doctor. Second, were you able to upload the whole test results? Is the 20 in the black box your results? The <32 is just a reference number and not your results. I don’t have my blood work through Quest, so I’m unfamiliar with their format. Sorry I’m not much help, hopefully someone else can be of better help. Quest also has a website that gives the tests that they perform and the reference ranges for each test. I hope you feel better. Jim
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#5 | ||
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New Member
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Quote:
Yes , my total seems to be 20 . Thank you for your attempt . I hope someone else can help . |
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#6 | ||
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Junior Member
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If your total is 20 then it is present in your blood. Most people without MG don’t have it present in their blood. The following came from a lab test site:
AChR antibodies are not normally present in the blood. They are autoantibodies and their presence indicates an autoimmune response. If a person has AChR antibodies and symptoms of myasthenia gravis (MG), then it is likely that the person has this condition. I hope this helps. Jim |
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#7 | ||
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New Member
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Thank you Jim . I feel more confident to schedule with another neuro prior to Nov 3rd.
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#8 | |||
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Grand Magnate
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I can try.
Auto-antibodies specific for the acetylcholine receptor are measured by running a serum sample in an immunoassay. Various different types of immunoassays can be used. There are two parts to the output; the result (its numerical value does not necessarily mean anything) and the reference range (the range over which the result is considered normal) Looking at the image that you posted above, the reference range is defined but I am not sure about the "20" in it. It might just be a code number or it might be the result. If you want to get more details from the lab which ran the immunoassay, I can interpret them for you.
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Knowledge is power. |
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#9 | ||
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New Member
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Hi Everyone! Thanks for your reply. I just received the rest of my blood work but not the EMG. I will attach the report. I am trying to get in with a private Doctor Neuro. Hoping these results are enough?
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#10 | |||
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Grand Magnate
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Thanks for the PDF.
The last one "Acetycholine Receptor Bloc Ab-SO" looks fine because the result is within the reference range but there is no reference range for the other two so it is hard to say.
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Knowledge is power. |
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