I have a new coping tool. When things seem darker I chose a bright spot , a good thing focus on. Today it’s the homemade cranberry sauce that came with my turkey dinner at hotel last nite. I rarely get to eat new much less hot meal. Sculptor 44

Sculptor 44, my heart goes out to you, I wish I had words, but no matter what we are going thru, we are on our own paths with what we are challenged with. I always thought 90% was good for oxygen. I do deep breathing on that issue for myself. I saw my neighbor last night, attempting to walk her little dogs and she has pretty advanced pulmonary issues, and it all got worse for her with the onset of RA about 5 yrs ago, prior to that a strong woman. She also mentions that she has post polio syndrome issues. Didn't plan to talk about her but I know her and hearing your story I chose to mention her. Do you meditate, silent meditation can do so much. Loving thoughts to you.

About 90% oxygen per my Pulseox unit my GP nurse said to report when it get down to that. My neuro got me an at home pulseox. Only recently are these lower numbers happening. My Mestinon for Myasthenia helps but can’t compensate for this much worse. Solumedrol really helps. The daily acupuncture I generally do helps. Since anxiety is not a problem for me meditation does not help my breathing issues. I have several types of mediation over the years including Tai Chi. The new pulmo said he wants to help improve my status. Tho rocky start I believe him. We just need some work getting on same page hopefully. Sculptor44.

Risky risky day! Had bad fall after not raising foot high enough coming out of building. Kind fella who was holding the door was like a football player soI grabbed for him and he caught me. When My body gets quite bad I say I am a ‘noodle’. Several appointments were scheduled at Mayo for this week. I have no idea how to do what they want with this body. Solumedrol can help but there are limits. Locally I have to try for more support. I have this brand new GP. Who referred me back to Mayo but I am new to her. I feel like my body is failing faster and I am scared tonight. I will hybernate tomorrow. I am glad I can. Sculptor44