Help from My Pain Clinic

Sculptor44 · 08-31-2021, 07:48 PM

Very worn from the Clinic appointment today. Wanted to at least say a bit. At last some good news. I had an extensive steroid treatment today I wasn’t expecting at all. The head PA there is a geriatric nurse too and she has known me a few years. She also discussed my oxygen and coming back next week to see how today worked for me. She had done reading on my records which I had complained wasn’t done last time. She didn’t see me last time. I will discuss more later. She had some bad info as I said here is out there but she is the one person who is more on my side I have seen in past year. Sculptor 44

Lara · 08-31-2021, 08:17 PM

Hi Sculptor,

Finally a little good news. You've been so patient.

Rest up and take care there.

Sculptor44 · 09-02-2021, 02:31 AM

I need some encouragement in getting through the next few days when steroids will be more kicked in and I will be more stable thru body. I so so miss being able to go for a walk outside especially around trees. At this time I physically can’t do it. I made a couple calls today and one text to work getting a homecare person back again. I need to be less isolated. Sculptor 44

Atticus · 09-02-2021, 11:09 PM

Quote:

Originally Posted by Sculptor44

I need some encouragement in getting through the next few days when steroids will be more kicked in and I will be more stable thru body. I so so miss being able to go for a walk outside especially around trees. At this time I physically can’t do it. I made a couple calls today and one text to work getting a homecare person back again. I need to be less isolated. Sculptor 44

Hey Sculptor44

I'm curious about how you chose your name "Sculptor44"

Take care buddy

Atty

Sculptor44 · 10-15-2021, 11:07 PM

Hi . With getting Covid my body ,my MG is sure worse but also new stuff. Going to ER again tomorrow. Yesterday was terrifying. My chest and breathing in a bad bad place put I tried to straighten kitchen before my homecare person came for errand. Yes I pushed and honestly tho it was brief. When sat my chest seemed odd and miserable. I did my pulseox and my oxygen was 70% with 24 as heart rate. I thought the 24 was a glitch but over next 20 minutes it stayed at 24. My oxygen very slowly but finally got up to 90% . Nothing takes me down faster than my fluids going screwy. Covid for some reason messed them up again. First few days my phlegm was like thick paint that would choke me. I seriously hydrate well so I do my best. I just caught the message on WHY I chose Sculptor 44. It is because I was , I am a Sculptor. I wish I knew how to put a photo in here. I would share one of my female figure heads as an avatar. I so miss the clay and the wood and the stones I used in the later years as a much easier material to create with. Sculptor44

Lara · 10-16-2021, 03:17 PM

Hi Sculptor, I'm not surprised that Covid hit you so hard considering you already have such complex breathing problems and all the rest.

A heart rate of 24 per minute would have me either in the emergency room, as much as I hate it, or at least call the GP or the nurse. That seems like equipment error to me What is your usual heart rate?

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