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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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02-25-2022, 12:02 PM
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Just got news my neurologist IS preparing to take away my Mestinon!!! I suspected this was where she was at because the anger off her this last visit was obvious tho she is such a subdued person. She gave my pharmacy 3 refill. She is furious I have gotten Solumedrol at ER in my City. I stopped going to ER at University where she is because they wouldn’t help me in recent years. At times I was mocked and once a resident saw me quit breathing durin his exam so he wanted to put me in ICU. His supervisor said no. I am worried about what my daughter is going to do with this. I left neurologist a message if I could send her my respected eye clinic records on myasthenia and the Voice testing in 2017 that stated it was MS or MG. I never got a call back. Sculptor44
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