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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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03-08-2022, 08:14 PM
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Had Pain Clinic Trip today which was a hard push as I more needed at least a Solumedrol shot of 125 units. Struggling worse than usual. Doing the paperwork for the new helper to start tomorrow. I am not sure I can do meeting. Daughter will. My ability to speak is worse. A lot of feeling trapped around this. Sculptor 44
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| "Thanks for this!" says: | Atticus (03-09-2022) |
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03-23-2022, 03:13 PM
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Doing better today as the IVIG headache and flu like symptoms are mostly gone. My daughter is doing the meeting with our new helper as I am not up for that. It is harder to eat enough when I am weaker. But the drawbacks at hospital made food worse. After enjoying a big serving of scrambled eggs first morn the nurse oh that’s not gluten-free. I couldn’t have grilled sweet potato for same reason. When I got gluten-free menu it was so limited. Seriously I said to nurse I just need some meat! I love my veggies but meat too. I feel somewhat newborn in my body. I ate much better today even some spinach. Sculptor 44
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