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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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04-02-2023, 12:01 PM
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As an update on new helper she didn’t do what I was hoping for or my daughter hoped. She was supposed to at least help me get moved to a place with more support services. That didn’t happen and I think she may have been partially responsible for how much this place did NOT know about my health status. I hoped perhaps she would help me get back to Mayo Clinic where things are so much kinder for me. Just recently My old Health caseworker sent me a message. It was a MUCH needed surprise. She took me to ER on March 19 th. I was in bad bad shape. My Vitamin D deficiency is raging out of Control cause of Winter and living at this facility. I so so Need SUN!!! I started meal in my room this week cause too weak to get to dining room. Sculptor 44
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| "Thanks for this!" says: | Lara (04-03-2023) |
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