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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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Junior Member
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Mestinon gives me diarrhea so I was taking Immodium usually once a day - that seems to cause constipation. Have any of you learned any tricks to deal with this?
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#2 | ||
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Member
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Anything that could constipate you might work. I have used a daily banana. Also I saw something about An old antidepressant that starts with A to counter side effects like that. Different things constipate different folks. Cheese affects my grandson that way. Sculptor44
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#3 | ||
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Newly Joined
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Try taking a light snack with your mestinon, for example a small pancake even 1/2 pancake, may help with reducing the diarrhea issues.
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#4 | ||
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Member
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If you have lactose intolerance, that could be the problem, at least in part. The mestinon pills use lactose as the filler (the stuff they mix the actual medicine with to be able to pack the pills into shape.)
I found that using a lactase pill (over the counter, like Lact-Aid or Dairy-Ease) with each dose of mestinon helped tremendously. Worked it down to using just 1/2, then 1/4, of the lactase tablet, which seemed to be enough for me. Taking it with some food also seems to help, as suggested above. something to temper the effect of the pill on empty stomach and guts. Why the manufacturers use lactose in pills, knowing so many people have trouble with it, is beyond me. |
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#5 | ||
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Newly Joined
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my doc just told me that there are meds that can be prescribed to take with MG
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#6 | ||
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Member
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I used to always coat my stomach first. Sour cream or milk is good. It has become harder to do. I think now the fact that I topically use a mild CBD Oil called a charlotte’s Web I have less side effects like bowels or they are mild. This is a safe product that kids with spasms and seizures use so I do find it helpful. My spasms have increased the past year and it is really good for this. There are studies going for Infantile spasm condition and this oil. I avoid products like Imodium as my body fluids already act up . One of my docs years ago suggested the old pill Amyltripilene. I didn’t spell this right. It’s an old antidepressant. Sculptor 44
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