FAQ/Help |
Calendar |
Search |
Today's Posts |
![]() |
|
Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
Reply |
|
Thread Tools | Display Modes |
|
![]() |
#1 | |||
|
||||
Member
|
(Continued from the autoimmune diseases forum)
Thanks, mrsd, for the link. I've not had time to check it out, yet, but I plan to do that as soon as I post this. Gabe, I took your advice and tried the regular Mestinon at bedtime, with another 60mg when I had to wake up for the bathroom. It worked GREAT! I feel much better this A.M. than I have. I plan to do this from now on. Plus, yesterday I had a horrible time with my morning pill, had to take 4 of the Donnatal for symptoms of overdose. Granted, I took my morning pill without food, but I just wonder if the Timespan of the night before was still lingering around longer than normal. You just never know exactly how the Timespan is going to work, or how long. ![]()
__________________
Lois . |
|||
![]() |
![]() |
![]() |
#2 | ||
|
|||
Junior Member
|
Hi Lois...I think I have alot more of the 'overdose' feelings with the Timespan - lots more GI stuff, sweating, twitching eyelids, etc. it is weird stuff and it seems like it releases in bursts rather than steady. I don't like it but i take it sometimes if I am running low on the regular stuff. It also gets damp really easily so i keep it in the refridgerator.
I just had IVIg and stopped at work to get some things to take home for the weekend. I am starting on my headache and nausea so i am going home to sleep it off! - Wish I had done something more fun to cause this feeling! Oh well, have a fine Friday. Gabe |
||
![]() |
![]() |
![]() |
#3 | |||
|
||||
Member
|
Hope you're feeling better, Gabe. Try to get over the headache and nausea. See you Monday when we get back from vacation!!!
Isn't it wonderful having our own forum!
__________________
Lois . |
|||
![]() |
![]() |
![]() |
#4 | ||
|
|||
Junior Member
|
Thanks Lois,
I always feel like "Wonder Woman" a few days after IVIg...it's Sunday and I feel great, dare I say "normal"? Hope you had a great weekend. Gabe |
||
![]() |
![]() |
![]() |
#5 | |||
|
||||
Member
|
Well, I'm back, and will probably have to take tomorrow off to recover from the vacation. We went to Chattanooga and saw Rock City and the Aquarium. The rest of the family also saw Ruby Falls, but I didn't attempt that one since I knew I could never keep up.
We used a wheelchair at the aquarium, and I just loved it. Rock City was fascinating and beautiful also, though I had to "cane" it through. We just piddled along at my very slow pace, getting over when other groups started to back up behind us. I can't believe I made it through, but I did. Had a great time, but don't want to go so far again. That long of a ride really tired me out just by itself.
__________________
Lois . |
|||
![]() |
![]() |
![]() |
#6 | |||
|
||||
Junior Member
|
Lois glad to hear you had a good time "but don't want to go so far again. That long of a ride really tired me out just by itself." You sound just like me. Staying home has become one of my favorite places
![]() Like your new picture. Who are the people? |
|||
![]() |
![]() |
Reply |
Thread Tools | |
Display Modes | |
|
|
![]() |
||||
Thread | Forum | |||
Question about Timespan | Autoimmune Diseases |