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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Junior Member
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Hi everyone, i have never posted on a online community before but i thought i'd give it a try after reading some threads that offered encouragement and understanding based on personal experience of a relatively rare condition
![]() I have a full time job and am self supporting. however, right now my job is evaluating wether or not i can come back from leave of absence b/c the weakness from MG has gotten so severe that it poses a liability risk if i am placed working by myself. Now, my doctor is talking of putting me on Cellcept, and we have pretty much maxed out mestinon's effectiveness for me as this latest drug trial with mestinon is requiring pretty high doses to maintain a minimal level of functioning. myasthenia can be a very frustrating disease with the way that you can be fine one hour and then so weak you can't hold your eyes open or head up the next minute. Does any one out there know what it is like being on cellcept? Has anyone else had the exprience that i have with mestinon where the dosage must be significantly increased about every 3 to 6 months to mantain an aproximation of the previous level of functioning? Ya'll have a great day, Sincerely, Bobcats (my college's mascot) rule |
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