Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
View Poll Results: Have others with MG experience weight gain prior to or shortly after being diagnosed?
Yes, during the year prior to being formally diagnosed. 3 27.27%
Yes, during the year prior to being formally diagnosed.
3 27.27%
Yes, in the year after diagnosis. 4 36.36%
Yes, in the year after diagnosis.
4 36.36%
No, not prior to starting treatment with Prednisone. 5 45.45%
No, not prior to starting treatment with Prednisone.
5 45.45%
No, I am not being treated with steroids and have experienced no weight gain. 0 0%
No, I am not being treated with steroids and have experienced no weight gain.
0 0%
Multiple Choice Poll. Voters: 11. You may not vote on this poll

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 01-13-2008, 02:54 PM #1
bobcatsrule's Avatar
bobcatsrule bobcatsrule is offline
Junior Member
 
Join Date: Jan 2008
Location: Athens, GA
Posts: 77
15 yr Member
bobcatsrule bobcatsrule is offline
Junior Member
bobcatsrule's Avatar
 
Join Date: Jan 2008
Location: Athens, GA
Posts: 77
15 yr Member
Default myasthenia and loosing weight - can it be done?

HI,

I have myasthenia gravis and i have gained a ton of weight (almost a 100 pounds in the past 2 years). I am not on prednisone but i still struggle b/c prior to myasthenia (started at age 16) i was very thin and then as the disease generalized (at about age 22) i started picking up the weight rapidly b/c i had to give up the 7 sports i was involved with and i associated food with energy but the food i would eat failed to give me the energy i needed to compensate for the myasthenia (which i was only diagnosed with during the past year). It has gotten to the point where i can't really ride my bike any more partially b/c of the weight and partially b/c of the fatigue and doubble vision. i have very little outlit for exercising (other than walking) and I'm wanting to get back into bike riding but I'm not sure how to progress up to that level (i used to ride 5+ miles per day before the disease generalized). I am trying to change my eating habbits now but i'm finding that i need to add exercise. however, the myastenia has generalized to the point that if i'm not careful my legs will collapse beneath me. i know there is a weight loss forum, but i wanted to start here b/c the weight gain is mostly related to the rapid degegredation of my energy levles. i know it is a self perpetuating cycle at this point but I don't know how to break the cycle at this point!

Any suggestions would be greatly appreciated!
bobcatsrule is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Hello! I am sad about Myasthenia Gravis Manatee New Member Introductions 7 11-27-2011 05:53 AM
Loosing strength and walking ability mmebtterfly Peripheral Neuropathy 34 01-27-2008 05:21 PM
Any tips on loosing weight Brian Peripheral Neuropathy 89 11-25-2007 01:11 PM
New Myasthenia medication Gabe Myasthenia Gravis 4 10-27-2006 10:35 PM
New Myasthenia Medication Gabe General Health Conditions & Rare Disorders 0 10-27-2006 04:38 PM


All times are GMT -5. The time now is 11:35 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.