If the neuro thinks it's MG, it likely is, as they don't give those diagnoses out lightly. Sometimes there simply isn't a "black and white" answer as you can test negative on blood but be chock full of MG antibodies (that there is no current test for.) I am one of those people and am going on 10 years of MG hell.

A trial of mestinon wouldn't hurt. However, be aware that it doesn't always work too well for double vision. There are no long term adverse effects from a short trial of mestinon and you'll know quickly if it works or not.

As for the nutritionist, etc. Go for it--to improve your overall health. However, don't expect it to change the MG symptoms. If it were that easy, I'd have been cured years ago. I've tried everything from acupuncture to vegetarianism and here I sit, with double vision.... (on a ton of regular meds, too.)

Good luck,

Missy

Hi Missy,
If you don't mind me asking how old are you? Do you work? If so how do you work with double vision. I'm home right now but eventually have to go back to work.

Hmmm. If that was the standard panal, then even your thyroid was probably not correctly as you need a free T3 and free T4 as well as the TSH. The other thyroid tests are not so helpful. TSH is only marginal as far as accuracy - if you have a pituitary problem (and one does not know until the other pituitary hormones have been tested) as TSH tests what the pituitary is telling the thyroid. Not how the thyroid is. Did you get thyroid antibody tests? You say you are taking herbs for your adrenal - that kinda makes me worry as they have done no testing for the adrenals and adrenals are funny things and like to shut down more if they get mad or get lazy.
BTW, always get copies of your tests.

Hi Patch,

I'm 45 now. Began MG in 1998, managed to work until Nov of 2001 (far longer than I should have, in hindsight.) My symptoms are very odd in that they come on full force for 2 weeks or so, then disappear almost totally for 10-14 days. I have had a drug dependent remission of 2.5 years but have been fully and severely symptomatic for the last 3.5.

When my DV is at its worst, it is more severe than I've heard anyone else describe. My eyes actually cross and the images intersect each other at odd angles, making my "world" very disorienting. I have to cover one eye to keep from crashing into items and falling. Driving is interesting or non-existent. Then it goes away, and I can enjoy life for a few days.

Hope this helps,

Missy