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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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11-12-2006, 02:23 AM | #13 | |||
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Hi Shari...
I'm new to this forum, but not to MG. My diagnosis was made in 1999 based on neuro physical exam and electrodiagnostic testing. As I am also seronegative for the KNOWN autoantibodies, my neuro confirmed my diagnosis also performing a Tensilon test. It is believed via MG research that there are other yet-unknown antibodies that affect seronegative MG folks. So don't let a doc tell you that you do not have MG just because your labs were negative. Oh: A negative CT chest scan does not rule out MG, either. I hope you find a good neuro...try to seek an MG specialist. If you call your local MDA, they may have a list of MG specialists. Opthamologists often make the diagnosis as ocular symptoms are usually the first to be seen. I was declared disabled and went into early retirement in 2001. I have many overlap symptoms and other neurological and rheumatologic issues as well (other than the lupus). Hope you have gotten some answers by now. Take care, Shari.
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Sharry |
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