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Old 06-28-2008, 04:19 PM #4
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eeyore2 eeyore2 is offline
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Join Date: Jun 2008
Location: Midlothian, VA
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15 yr Member
eeyore2 eeyore2 is offline
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eeyore2's Avatar
 
Join Date: Jun 2008
Location: Midlothian, VA
Posts: 69
15 yr Member
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Thanks for the input--I'd hold off on the self medicating.

I'm 40 years olds with 3 kids and I have a career at NIH/NCI in cancer research---up until ~1mo ago I was at least stable (I had to thicken liquids) and working full-time without a problem. For the last month I can't eat (I lost 25lbs---no that that is a bad thing), can sit up for ~1hour at a time and can barely keep up with the minimal work requirements from home---and my neurologist doesn't want to try to do something.

Here I sit, with a stupid tube feeding, problems breathing and no plans for improvement short of spontaneous recovery (well at least that happens with MG).

Speech therapy didn't want to work with my swallowing until it got a little better (I have another appoint scheduled on Mon).

Sorry for the rant...I'm just really frustrated and ******-off...and to think I work in the medical profession...my colleagues keep asking me what I'm doing to get better and basically I'm not doing anything
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